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Hi Katie. I just got this for the first time in May. The first episode the sores were where I urinate so I thought I had a urinary infection because it hurt so badly when I urinated. The doctor gave me an antibiotic but it didn't help so I went back to her again and this time she examined me and found the sores. I went on the meds to clear it up and it did. Now it is 4 months later and I have severe itching around my anus. I'm not sure if there is a sore but there may be. It's very uncomfortable and when I rub it to try and relieve the itchiness, it hurts. Totally different symptoms than the first time so I wasn't sure it was an outbreak again or not but since people have said that they had itching, I'm pretty sure it is that. My gynecologist said that if I have herpes 2 that it can reoccur regularly, type 1 not so much. I'm not sure which one I have.
The Worldwide Lichen Sclerosus Support website has much information on how this skin condition is diagnosed and how to treat it. The literature is fairly consistent in recommending the use of a potent steroid, clobetasol propionate, on the affected areas. In one study, the use of clobetasol propionate cream resulted in a 77% chance of complete remission of symptoms for lichen sclerosus patients. If you are diagnosed with this skin condition, your doctor will provide guidance as to how often to use your steroid cream.